I have had Chronic Fatigue Syndrome since 1985, the main symptoms are constant tiredness, lack of physical and mental stamina. I also have Eczema, Irritable Bowel Syndrome, Acid Reflux, Chronic Headaches, Anxiety and Depression with suicidal thoughts.
At various times I have tried to get help with the depression and only recently have I been taken seriously. Below is a simple summary of the care I have received. Much of this is written from memory and is therefore open to error.
- 21st October – Dr Steptoe (GP) – Citalopram increased to 40mg – referred to Lift Psychology
- 28th October – Rachael (Lift Psychology) – Advised to get signed off work
- 28th October – Dr Steptoe (GP) – Signed Off for ten days
- 4th November – Caroline & Brian – Lift Psychology Stress & Low Mood Course
- 7th November – Dr Stephenson (GP) – Signed off for a month – Referred to Sandalwood Court
- 11th November – Caroline & Brian – Lift Psychology Stress & Low Mood Course
- 15th November – Met Hope, Psychiatric Nurse (Sandalwood Court) – Referred to Intensive Care Team
- 16th November – Met Emma (Intensive Care Team at Sandalwood Court) – Told to go back to my GP
- 18th November – Caroline & Brian – Lift Psychology Stress & Low Mood Course
- 19th November – Dr Steptoe (GP) – Told to call Intensive Care Team and make appointment with Lift Counsellor. Dr also said would call Intensive Care Team
- 20th November – Caroline (Lift Psychology) – She said she would call Intensive Care Team
- 21st November – John (Intensive Care Team) – Discussed my situation. Made appointment for following day.
- 22nd November – John (Intensive Care Team) – Discussed care plan. Made appointment for his colleague to meet me on Monday 25th November between 3pm and 5pm. I stressed the importance of the appointment being before 5pm as I had to go the the Lift Psychology course which starts at 6:30pm. Made another appointment with John for Wednesday 27th November at 11am with him and Psychologist. He said he would bring a care plan to sign.
- 25th November – Doorbell rang at 6pm. Person at the door was on his mobile telling someone that he would be back in the office in 20 minutes. When he had finished his conversation he asked if he could come in. I declined, not knowing who he was. He then said he was with Swindon Mental Health and asked if I wanted to talk. I still declined as I was due to having to go to the Lift Psychology Stress & Low Mood Course
- 25th November – Caroline & Brian – Lift Psychology Stress & Low Mood Course
- 26th November – Lisa (Intensive Care Team) – Called to let me know that I would receive a call the next day to make an appointment with the Psychologist
- 27th November – Psychologist – Arrived at 11:30 without John, but with a student nurse (Lisa?) instead. After talking told me I have mild Aspergers/Autism and he will discuss with colleagues who I should be referred to next
- 29th November – Letter from the Recovery Team – They will call me
- 2nd December – Lisa (Intensive Care Team) – Called to make an appointment
- 3rd December – Emma (Intensive Care Team) – They have referred me to the Recovery Team for long term care as the Intensive Care Team is only short term (4 weeks). She said she would get them to call me urgently
- 4th December – Clara (Recovery Team) – Didn’t seem to know anything about me. When I told her what the Psychologist had said, she told me that I therefore didn’t have a mental illness and didn’t know why I had been referred to the Recovery Team and that I should go back to my GP. She did relent and said she would make an appointment with her Psychologist
- 5th December – Dr Tomboline (GP) – Signed off for a month. He called the Intensive Care Team and told them to call me
- 5th December – Emma (Intensive Care Team) – Called me thinking she was calling Dr Tomboline. Seemed surprised that Clara did not know why I was referred to the Recovery Team. Made appointment to visit me with Clara at 3:30pm, 6th December
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